Okay, so I had been wondering why my blog had been a dry wasteland of responses for about 6 months. I had been getting emails no problem, but not many hits on the blog. Turns out it was one big administration blooper. Oops. My husband and I went to check on things today and discovered a geyser of responses, mainly from my E.T. posting back in March. We think itâ€™s due to updating the site around that time â€“ apparently something went wrong.
I sincerely apologize for this. I am overwhelmed by the sentiments in response to my Essential Thrombocytosis (E.T.) diagnosis, illustrated in the two-week series I did way back when. Iâ€™d like to mention I am doing well, my platelet count still remains steady for now.
Iâ€™d also like to repost the links to the two foundations I had mentioned in March: the MPD Foundation and the MDS Foundation. Iâ€™ll also add two other links a reader had sent: MPD-Support and MPDinfo.org. E.T. is a called an â€œorphan diseaseâ€ because itâ€™s so rare and therefore kind of falls under the radar for funding/research. And the three other myelodysplastic (blood) disorders certainly deserve funding as well, considering one or two of them come with limited life expectancy.
Once again, I apologize for the delayed postings. Thank you, thank you for all the words of kindness!